NOW LAW: Corrado/Rooney/DePhillips Resolution Designates January as NUT Carcinoma Awareness Month

Honors Life of Wyckoff Teen Benjamin Landel

Legislation sponsored by Senator Kristin Corrado, Assemblyman Kevin Rooney, and Assemblyman Christopher DePhillips that raises awareness of NUT carcinoma, an aggressive cancer usually diagnosed in young victims, has been signed into law.

The resolution is dedicated in memory of Benjamin Landel, a Ramapo High School soccer and track star who succumbed after a nine-month battle with this cancer.

“Benjamin was a courageous young man from my district, and the way he lived before and after his diagnosis was an inspiration to many,” said Corrado (R-40). “Even as he fought this rare, aggressive cancer, he inspired other patients with his selflessness and outgoing personality. Through this law, his spirit will continue to support young people dealing with pediatric cancer and their families.”

The new law, AJR-103/SJR-70, designates every January as NUT Carcinoma Awareness Month.

“Raising awareness can help others struggling with symptoms receive the correct diagnosis,” said Rooney (R-40). “That was Ben’s hope. He was a determined, courageous, selfless teenager who helped others while overcoming many obstacles as he battled this horrible disease.”

“This disease is often overlooked and difficult to diagnose because its symptoms mimic those of other cancers,” said DePhillips (R-40). “Ben, along with his family, friends, and teammates, did an incredible job bringing this awful disease to the attention of the nation. Despite all the pain and suffering Ben endured, he continued to show amazing courage and strength until his last day on this earth. He continues to be a hero and an inspiration to everyone who knew him. I am beyond thrilled that we now have January dedicated to raising awareness of this disease, and the treatment strategies to combat it.”

NUT carcinoma is a rare genetic cancer predominantly found in boys. It can form anywhere in the body, but often affects the head, neck, and thoracic cavity. The average survival rate is six to nine months.

“Designating January as NUT Carcinoma Awareness Month will broaden awareness of this type of cancer and the new treatments that are improving survival rates,” Corrado added. “Better outcomes are more likely when NUT carcinoma is diagnosed early.”